Seattle Washington
Meet Marguax & Madison
Trinity 2013-18

Hi my name is Margaux. I’m 16 years old and have lived in Washington State my whole life. I love to swim, do gymnastics, watch movies and hang out with my friends. I am also a shopper!

 

During a routine check-up with my doctor, I was diagnosed with scoliosis in the middle of my 7th grade year of middle school. Even though my curve was relatively mild, my doctor decided to brace me since I hadn’t started my growth spurt. I started wearing a Rhode Island brace in January of my 8th grade year. My doctor would always joke that I might have to wear my brace until I was walking down the isle at my wedding since my growth was still in its early phase. At the beginning of my 10th grade year, even though I was still growing, I stopped bracing because of chronic back pain since we believed the brace might be causing the pain. I also had to quit gymnastics because of pain. At the same time I stopped bracing, I started doing Schroth physical therapy twice a week with a therapist. Schroth therapy has helped me immensely and I’m doing much better. I still am not doing gymnastics, but I am trying to swim more for exercise and stress relief.

 

I’m thrilled to become a leader for the Washington Curvy Girls group. It can be a challenge having scoliosis and I want to support other girls and their families.

Hi my name is Madison. I am 13 years old and live in Washington State. I participate in activities such as volleyball, track and field, ballet, and playing the viola. I also love to spend time with my family, read, and watch movies as well.

When I was at my twelve-year-old routine check-up, my doctor informed me that I had scoliosis. They took pictures of my spine and told me that I had a 45 degree curve and that I needed to go see a specialist. I was put in a Boston brace in November of the first year of middle school. My doctor said that I would have to wear my brace 18 hours a day for about 3 years which I was not excited about. My mom signed me up for Schroth in January of 2019. The moves were very helpful and even decreased my curve by one degree. Over time, I got used to my brace and felt more comfortable talking about it with my friends and classmates. I still had to do P.E. even though I had to do modified moves. The kids in my class would always ask me why I was doing that and I usually would say that I was special. My P.E. class was before lunch so, I had to sneak off to the nurses office to change into my brace because I didn’t want to other kids in my P.E. class knew that I was wearing a brace. At the end of first semester in 7th grade, I had to stop P.E. because I wasn’t getting enough hours in my brace. I'm now a T.A. for an English class and a class with disabilities. I out grew my brace and I now have to wear a WCR brace.

I am thrilled to start as a leader for the Washington Curvy Girls group. Even though scoliosis is a challenge for the girls and their families, I am very excited to help the girls get through their scoliosis journey.

 
Meet Maddie
Whatcom Co
Mackenzie 2014-16
Central Washington

Hi, my name is Maddie! I am 14 living in Malaga Washington where I can ride my bike and swim all I want in the community pool! When I was in 6th grade I was diagnosed with scoliosis. I had no clue what it was. I just knew that I was told I needed an X-Ray. The results came back, and it turns out my spine was at a 20-degree curve. My doctors just said they wanted to watch it and make sure it can’t get any worse.

 

A year went by and I had another X-Ray for my spine. Turns out it had progressed to 29 degrees. I was recommended to Seattle Children’s Hospital right away, but we didn’t make the appointment for another 6 months. Once we had the appointment made, I got more X-Rays and it had progressed again to 30 degrees. I was immediately fitted into a Boston Brace that I needed to wear for most of the day. 8th grade year started up and I had to wear the brace everywhere. But I had to take it off for P.E or any physical activity. I hated dressing down because of the loud noises that the Velcro made as I took off my brace and all the stares and questions I would get. I would get about 5 people ask me what it was a day! I would always complain to my mom about how my day went with my brace. And during volleyball, the brace got even more attraction. I would wait until everyone left to dress down, so I was always the last one out.

 

I play volleyball and I run in track! So, it is a lot of fun, but my brace was always the thing on my mind rather than how I am doing in the sport. After track season, I was messaging a fellow leader named Izzy from Wichita about how she was doing and how she became a leader. I mentioned my interest in becoming a leader and she began telling me more about it, and I got even more exited to do it! When I became more exited to do this, I realized that I wasn’t scared of showing my brace off or talking about it to anyone. I wouldn’t mind speaking about it to anyone and I would always answer any question they asked. I also realized that they meant no harm in what they were asking. Because when I thought about it, if I were in their shoes and I saw someone wearing it, I would be a bit curious also.

 

The reason why I wanted to become a leader was because I love helping people and giving advice to them to help. Supporting people and their challenges gives me the biggest smile! My mom has always told me every day as I get out of the car to go to school, “Shine your light today!” And it didn’t make sense to me until I realized what it meant--- to make someone smile more than you could ever do.

 

Now, my scoliosis can’t stop me from being the person I am today.     

 

Bellingham Washington

Meet Sofia

I found out I had scoliosis about a month after my eleventh birthday. Our doctor quickly got us an appointment at Children’s  Hospital for an X-ray and things went on from there. We soon got set up with Dr. White since my curve was about 52 degrees. A month later, I had my first session of Schroth physiotherapy. My mother soon found out about Curvy Girls and took me to my first meeting (it was right after the CG convention 2018). 

 

I like reading, music, nature, art, sewing, knitting, birds of prey, and crafts. I do karate, play the flute and am homeschooled (oh, and I am also in Camp Fire). 

 

I want to make a difference by helping girls like me who need support, comfort, love, and understanding!

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