Seattle Washington
Meet Marguax
Trinity 2013-18

Hi my name is Margaux. I’m 16 years old and have lived in Washington State my whole life. I love to swim, do gymnastics, watch movies and hang out with my friends. I am also a shopper!

 

During a routine check-up with my doctor, I was diagnosed with scoliosis in the middle of my 7th grade year of middle school. Even though my curve was relatively mild, my doctor decided to brace me since I hadn’t started my growth spurt. I started wearing a Rhode Island brace in January of my 8th grade year. My doctor would always joke that I might have to wear my brace until I was walking down the isle at my wedding since my growth was still in its early phase. At the beginning of my 10th grade year, even though I was still growing, I stopped bracing because of chronic back pain since we believed the brace might be causing the pain. I also had to quit gymnastics because of pain. At the same time I stopped bracing, I started doing Schroth physical therapy twice a week with a therapist. Schroth therapy has helped me immensely and I’m doing much better. I still am not doing gymnastics, but I am trying to swim more for exercise and stress relief.

 

I’m thrilled to become a leader for the Washington Curvy Girls group. It can be a challenge having scoliosis and I want to support other girls and their families.

 
Meet Maddie
Whatcom Co
Mackenzie 2014-16
Central Washington

Hi, my name is Maddie! I am 14 living in Malaga Washington where I can ride my bike and swim all I want in the community pool! When I was in 6th grade I was diagnosed with scoliosis. I had no clue what it was. I just knew that I was told I needed an X-Ray. The results came back, and it turns out my spine was at a 20-degree curve. My doctors just said they wanted to watch it and make sure it can’t get any worse.

 

A year went by and I had another X-Ray for my spine. Turns out it had progressed to 29 degrees. I was recommended to Seattle Children’s Hospital right away, but we didn’t make the appointment for another 6 months. Once we had the appointment made, I got more X-Rays and it had progressed again to 30 degrees. I was immediately fitted into a Boston Brace that I needed to wear for most of the day. 8th grade year started up and I had to wear the brace everywhere. But I had to take it off for P.E or any physical activity. I hated dressing down because of the loud noises that the Velcro made as I took off my brace and all the stares and questions I would get. I would get about 5 people ask me what it was a day! I would always complain to my mom about how my day went with my brace. And during volleyball, the brace got even more attraction. I would wait until everyone left to dress down, so I was always the last one out.

 

I play volleyball and I run in track! So, it is a lot of fun, but my brace was always the thing on my mind rather than how I am doing in the sport. After track season, I was messaging a fellow leader named Izzy from Wichita about how she was doing and how she became a leader. I mentioned my interest in becoming a leader and she began telling me more about it, and I got even more exited to do it! When I became more exited to do this, I realized that I wasn’t scared of showing my brace off or talking about it to anyone. I wouldn’t mind speaking about it to anyone and I would always answer any question they asked. I also realized that they meant no harm in what they were asking. Because when I thought about it, if I were in their shoes and I saw someone wearing it, I would be a bit curious also.

 

The reason why I wanted to become a leader was because I love helping people and giving advice to them to help. Supporting people and their challenges gives me the biggest smile! My mom has always told me every day as I get out of the car to go to school, “Shine your light today!” And it didn’t make sense to me until I realized what it meant--- to make someone smile more than you could ever do.

 

Now, my scoliosis can’t stop me from being the person I am today.     

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