China

Hi! My name is Runzi and I am currently studying at Beijing National Day School as a Grade 11 student. I Live in Beijing with my family. I have a passion in traveling, literature and helping others. 

I was 13 when I was diagnosed with scoliosis, at that time, it wasn’t severe, so the doctors recommended no treatment at all and told me to come back a year later. After a year, the situation grew worse, so the doctor recommended surgery. But after my family and I understood the potential harm of surgery, we decided to receive a milder treatment instead, and that’s when I met my curreent specialist. He introduced brace treatment for me and now I have been wearing a brace for more than two years. My curve was straightened a bit and I hope I can remain that safe status. 

I have always wanted to reach out to my fellow patients, so in 2021, I reached out through my doctor and got in touch with more than 200 patients and parents. It is a tight community. We would chat online everyday about our curves, our treatments and our lives. We would also post pictures of us doing Schroth exercise and encourge each other to keep on going. I know that scoliosis is still a quite mysterious disease in China and it deserves more attention. I also acknowledge that we use different platforms in China. So if you want to reach out to me, I am available not only on email, Facebook, and instagram, but also WeChat, Weibo, and Xiaohongshu. 

Scoliosis doesn’t stop me from doing what I want to do, instead, it connected me with you guys. So please don’t ever feel ashamed to be who you are. We’ve got your back! 

Hi！我是马润子，就读于北京市十一学校，今年读高二。我现在和我的家人住在北京。我热爱旅游、文学和帮助他人。我在13岁的时候被诊断出脊柱侧弯，由于当时侧弯情况并不严重，所以医生说不需要治疗，让我一年后再来观察。一年后，我的侧弯度数显著增大，我也错过了一年的治疗时间，所以医生建议直接手术。但在我和家人了解到手术的潜在危害后，我们决定接受一种更温和的治疗，我遇到了我现在的专家，他为我介绍了支具疗法，现在我已经戴支具两年多了。我的侧弯度数减小了很多，我也希望能够一直维持这种稳定状态。我一直想和同样拥有脊柱侧弯困扰的同龄人取得联系，所以在2021年，我通过我的医生联系了200多名病人和家长。我们构建了一个紧密的线上社区。我们每天都会在网上聊天，聊我们的侧弯情况、治疗方法和生活。我们还会在群里打卡出我们做施洛斯体操的照片，鼓励彼此坚持下去。我知道，脊柱侧弯在中国仍然值得更多的关注，我也知道我们在中国使用不同的平台。所以，如果你想联系我，我不仅可以在电子邮件、Facebook、instagram上，大家还可以在微信、微博和小红书上找到我！脊柱侧弯并没有阻止我做我想做的事，相反，它把我和你们联系在一起。所以请不要为做自己而感到羞愧。永远有人了解，并愿意支持你！