NE ON Leader
Southwest Ontario Canada
includes Chatham-Kent and London, as well as surrounding cities and towns in
Western Ontario towards Windsor
Hi! I'm Juliana and I'm 16 years old and in grade 11. I live outside a small town in Southern Ontario. I was diagnosed at age 10 when my mum took me in to my Chiropractor because she thought I looked a little crooked. I was seeing my chiropractor until the beginning of 2017 when my pain increased so much that I couldn't get out of bed most days. I started going to physiotherapy and massage, as well as continuing going to my chiropractor. I also was told to go back to swimming as it is good for my back. Before I was diagnosed I had never heard of Scoliosis, so I had no idea what it was.
I found out about Curvy Girls from some of my online friends who have scoliosis and through Curvy Girls I got to meet girls in my community who are going through the same thing as me. I want to be a leader so that I can help girls just like me in my community.
I enjoy playing soccer, singing, meeting new friends, and reading. I'm will be attending University to become a teacher.
Hi, my name is Lauren. I am in 13 years old and in grade 8. I live in a small town in Ontario. I enjoy horseback riding, reading and listening to music. I found out I had scoliosis last year when my mom saw that the back of my shirt was catching on a lump on my back. I got an x-ray and the doctor sent us to a hospital 2 hours away where I was diagnosed with AIS-Adolescent Idiopathic Scoliosis. My curves were about 60 degrees thoracic and 55 lumbar. I had spinal fusion surgery on October 19, 2016. I was a little scared as it got closer even though I trusted the doctors and nurses. I went back to school in January. I will hopefully be able to go back to horseback riding soon.
I hope that as a Leader I can help girls going into surgery not be so scared about it and just give advice and answer questions like the girls and Leaders helped me.
includes York, Peel, Halton, and Durham regions, along with surrounding cities/towns
outside of Toronto
Hi, I'm Noa. I was diagnosed with scoliosis by complete fluke in August 2016. With 24 and 19 degree curves, I would need to wear a back brace for 22 hours a day for 3 years. I attended my first Curvy Girls meeting a month before I was to get my brace. I was completely devastated about getting a back brace but after that one meeting, I had a completely different attitude towards my scoliosis. Now I've had my brace for 7 months and I have very few complaints.
Scoliosis has been the most rewarding and challenging experience I've ever had to deal with and I am happy to be able to help girls battling scoliosis and spread awareness about this disorder and help girls with scoliosis emBRACE it
Hi, my name is Izzy and I am 14 years old. In September 2015, my family doctor diagnosed me with idiopathic scoliosis. I was then sent to the hospital ‘Sick Kids’ to have x-rays. The x-rays revealed that I had a ‘S’ curve with a 45° top curve followed by a bottom curve in the 30’s. Shortly after I was casted for a Rigeaux Sioux Brace, which I would wear for 22 hours a day. My mom soon learned about the Schroth Method which combines body movements and breathing techniques to reduce your curves. Unfortunately, I experienced too much pain from it and had to stop. I started seeing my family's chiropractor where I was happy to experience less pain in my back. And by spring of 2017, my top curve had grown to 57° with my bottom curve not far behind. Surgery was soon recommended and I am now on a waiting list for surgery.
When I first found out i had scoliosis I had no idea what it was. After talking with my parents I finally realised that it was a curvature of the spine. I was quite upset and would continue asking myself "Why me?" I was very self-conscious for the first year until I finally started “embracing it”. I realised this is who I am and the more i accept that the more I will be able to be happy with myself. I have grown so much from my scoliosis experiences and am waiting to see what comes next. I want to take my story and help others get through their scoliosis journey. Curvy girls helped me so much in the last two years and I am honoured to now take over leadership.
I hope that I will help others to think positively about their scoliosis knowing we are all in this journey together.
Gillian Senior Leader Mentor
Hi, my name is Gillian and I am 18 years old. In 2009, my family doctor diagnosed me with adolescent idiopathic scoliosis. Following my diagnosis, I was sent to my local hospital, SickKids, for x-rays and to speak with an orthopedic surgeon. My x-rays revealed an “S” curve, both which were in the 30’s. It was recommended that I wear a back brace to prevent my scoliosis from progressing. Over the course of five years, I wore both the SpineCor and Cheneau for 23 hours a day. The tension based and rigid brace brought their own unique set of pros and cons which led to a very unique experience. Despite wearing my brace religiously, my curves kept increasing dramatically. By the winter of 2014, my curves had spiked well into the 80’s. Due to the painful side effects and the disfigurement of my body as a result from my curving spine, I received spinal fusion surgery at SickKids hospital on March 6, 2014.
From my diagnosis to surgery, my family and friends have been very supportive and made my scoliosis journey one that I am very proud of. Over the years, I have learnt to love my scoliosis and appreciate all the small imperfections that make me who I am. I wanted to share my outlook on life and all my experiences with others who are in the same position as I was. Curvy Girls has allowed me to grow and develop skills that I never knew existed within me. I formed a sense of leadership and pride. Curvy Girls Toronto was founded in 2012 and has thrived with the help of the community. Meeting once a month, girls and their parents come together to exchange knowledge, gain support and ask questions. Our members come from Toronto and the surrounding areas allowing a diverse group of people who all seek different treatment in the common goal to slow, stop and prevent ones scoliosis from progressing.
I hope that my story can help empower other girls to think positively about their scoliosis and to realize that they are not alone on their journey.