Hi, my name is Anna and I am 14 years old. My scoliosis was found in 2010 when I was 6 during an x-ray because it hurt to breathe. My mom took me to see an orthopedist, Dr. Goodwin, who said my curves were small and I didn't need bracing yet. One year later, my curve went from 19 degrees to 23 degrees, so we decided to start bracing in hopes that my curve wouldn't get much worse. I wore a Providence Brace, which was only worn at night while I slept. In February of 2016, I switched to a Rigo Cheneau brace made by Luke Stikeleather in Virginia. I decided to go to this brace because my curve had increased from 29 to 36 in about 8 months during growth AND I had met Luke and learned about this this brace at the 2014 Convention. I also do Schroth physical therapy to help me.
I started the Cleveland group in 2013 and I love Curvy Girls and our group. We meet once a month to support each other and do fun things too. I have been fortunate to be able to attend the CG Conventions in 2014 and 2016 where I learned a lot about leadership and made some great friends!
My mom and I have done some presentations to PTA groups and our school board about the importance of screening for scoliosis. I have also been to one of my CG members schools to educate about scoliosis. Our group has held 2 walkathons as well to bring awareness and fundraise for Convention. Each year since 2014, I write to the Governor to Proclaim June National Scoliosis Awareness Month. In 2017, I wrote to our Mayor, and he made a resolution for the city to do the same!
Meet Maggie & Katelyn
Kiki & Alyse 2013-14
Hi, I am Maggie and I am the co-leader of the Columbus, Ohio chapter! I am 16 years old and have been part of Curvy Girls since the summer of 2018. I was diagnosed with scoliosis when I was 12 but wasn’t put in a brace until about a year later. I wore my brace for 2 years when I was told I was allowed to switch to a night-time only brace, and now I am out of my brace permanently. Something that really helped me during this process is that my sister also was going through her scoliosis journey, so I could always talk to her if I had questions or needed help.
In my free time I love to hang out with my friends, do puzzles and make friendship bracelets.
I know from experience how helpful it is to ask questions to someone who is going through the same thing as you are. I want to help as many girls as I possibly can during my time as co-leader because even a small piece of advice can make such a huge difference. I want everyone to feel welcome, and I never want anyone to feel like they are going through their journey alone.
We found out that my cousin was diagnosed with scoliosis so my mom checked my brothers and I when she noticed my back had a curve to it. I was eight when I went to the doctor and they told me I had scoliosis. When I was ten my curve got worse so I had to get fitted to wear my first back brace. I finally grew a little as did my curve, so I just got my second brace in May.
I enjoy cheerleading and volleyball. In my spare time, I help out around the house with chores. We live in the country. I like doing flips on my trampoline, swimming or going on the zipline over our pond.
I think that it is important for new kids to know that they are not alone. These meetings are very helpful and fun to be part of. I want to know that I am helping somebody to know they are not alone. Having scoliosis is very hard because you might be the only one at your school with it.
My name is Naiara and 13 years old. I love to draw and I run cross country. I speak Spanish and English and I visit my family over in Europe almost every summer in a place called the Basque Country (between Spain and France). I was diagnosed with scoliosis at the age of 9 with a curve of 24 degrees. I believe it is okay to be sad about your scoliosis. It is okay to be a little bit scared. And it is okay to feel like no one understands you. This is why the Curvy Girls support group was invented. We are here for you when you need help.
When I was diagnosed with scoliosis, the doctors told me to wait for another xray six month later before doing anything. But my mom was not having that. So I began to do Schroth (a physical therapy) to keep my curve progression at a minimum. When we went back to the doctor, we were not so lucky with the results and my curve had progressed 8 degrees a total of 32 degrees. So we went to Washington, DC and got a Rigo Cheneau brace. I had a wonderful experience watching mesmerized as the brace maker, Luke Stikeleather, worked swiftly to make the brace to fit my torso.
Afterwards, I continued to do Schroth physical therapy 5 days a week and wore my brace for 21 hours a day for 2 ½ years. It was extremely difficult for me to keep up with the needs and demands of the curve. I often hated it, but I kept breathing and took it one day at a time. The Rigo brace and Schroth worked together, as I was told, and kept my curve from progressing for another year. By the middle of seventh grade, I was finally able to go to school without my brace. I was thrilled!
For the first couple of months without the brace at school, I quickly realized that I didn't have the back support that I had before so my back would hurt. I would have to pay attention to my posture all day at school to avoid pain, but over time this is happening less and less. Now I am at the point where I only have to wear my brace during the night. And I don't know where this roller coaster could take me. I have a feeling that this is not the end. And there is still another hill to ride. But whatever happens, I will get through it. And so will you.