Asheville North Carolina
Hi! My name is Annika, and I am sixteen years old. When I was thirteen, I found out I had scoliosis. It was actually in a bit of an odd way. I noticed an abnormality in my back a couple years earlier but hadn’t really paid much attention to it. The only reason I x-rayed my back was because my dance teacher said that she wanted to see if the abnormality was scoliosis. She was right and a new journey in my life began. From there, I was braced for about a year and now I am going to yearly checkups with my orthopedic surgeon. Through this whole experience, one of the things that stayed constant was dance. I have been dancing since I was two years old and loving it, most of the time. But no activity is perfectly suited to a person, so I’ve had ups and downs in my relationship with dance. However, dancing allowed me to attempt to retain the core strength I had before wearing the brace and build up that strength after the brace.
Along with dance, I love to read, swim at my lakehouse, hang out with my family, and play with my dog and cat. I have to say, scoliosis has been, and will be, an experience I will not forget even though I didn’t have surgery. I just need to remember that I’m not alone in the world of scoliosis; there are many others who are bent but not broken just like I am.
When I was first diagnosed with scoliosis I felt completely alone and I had no one to talk to who was going through the same thing. But now, after I have gone through it, I have realized that scoliosis is actually quite common. Through this realization, I have become more open with sharing my own story. I want to be the leader for many people struggling with scoliosis to talk to and receive advice from. I have had time to reflect on my own experience, so I feel capable to help others reflect on theirs in a positive and guiding way. I feel that it is important to have a base of support to go through an experience such as scoliosis, and I wish I had known more people when I was diagnosed who I could confide in besides my parents. Do not get me wrong, parents are an amazing resource to talk to about your struggles and victories with scoliosis, but it is not the same if they never went through the same experience.
By creating a group in my area through Curvy Girls, I want to be a rock for many girls going through the same shocking experience I went through when I was thirteen. I want to make a difference in the lives of those girls to make their experience the least painful and scary it can be.
Charlotte North Carolina
Hello my name is Sophie. I am 12 years old and I have Scoliosis. I have had it since I was in Kindergarten. I have had to wear a brace since I was 6 years old. I wore my brace at night. My curve is now 70 degrees. When I was diagnosed my curve was 26 degrees. Because my curve is so bad the brace won’t work anymore. In 2 short weeks I will have the surgery to get my spine straight again. This surgery is going to be a big deal. I can’t wait to have it because I will be able to be my normal self again. My surgery is going to be in South Carolina at Shriners Children's Hospital. The procedure will take 7 hours but after I will not have a big curve anymore.
Even though I have Scoliosis I have never let it stop me from doing the things I love. I currently play tennis and did gymnastics for years. I also love to do crafts and playing with my puppy Murphy.
I have been a member of Curvy Girls for the past three years.This has been very helpful to me because I found out a lot of information I didn’t know . Some of the girls have had surgery and some have not. The current leader is going to college, so now I am taking over the position . I am excited to be the leader of the group because I want to help people the way that the group has helped me.
Click link below
The Triangle North Carolina
My name is Laura and I was diagnosed with scoliosis in August of 2016, right after I turned 12 years old. My mom noticed that I was starting to lean to one side of my body so she took me to my pediatrician who then referred me to an orthopedist. I was x-rayed and found to have a curve of 22 degrees at the top of my spine, and 31 degrees in the lumbar area. I was immediately fitted for a brace and began wearing the Boston brace the week before starting 7th grade. I didn’t want to have to explain to everyone at school about my new brace, so I decided to post a photo of myself in my brace on social media; that way, everyone knew about it before school started. All of my friends were very supportive and helpful.
In my spare time, I do middle school soccer, play the alto saxophone, and I have my 1st degree Black Belt in Tae Kwon Do. I also like to spend time with my friends and play with my dog, Ginger.
I would really like to start a support group where I live, because sometimes I feel like I’m the only one who is dealing with the struggles of scoliosis when I know that there are others out there, too. I think it would be helpful for those of us are going through this challenge to be able to share our struggles and support one another.