Ann Arbor Michigan
Hello! My name is Ellie. I am 14 years old. Some of the things I like to do are painting, playing ukulele and piano. I participate in track, which consists of many events but my favorite is pole vaulting. I also play clarinet in my high school’s band. In school, I like to participate in leading opportunities, and help out in my community.
I was diagnosed with scoliosis in April of 2015, so I was in the 5th grade. I got a Boston brace and I had it for over two years. I wore my brace like I was supposed to, though, my curve increased. In August of 2017 we had to start thinking about fusion surgery because my curve was increasing to 45 degrees. My mom and I decided it might be a good idea to look for other options before we decided on surgery. We ended up finding a doctor close by that made Rigo Cheneau braces. I also tried Schroth Therapy. Those two things helped my curve slow slightly for a few months. We also researched many options and my therapist told me about Vertebral Body Tethering surgery (VBT).
After a few appointments, many months of researching both surgeries and going to many doctors, my curve increased to 50 degrees. We then decided that VBT was the right surgery for me. On April 30th, 2018 I had VBT surgery. It ended up going very well and the results were good. My curve decreased more than 20 degrees. As of summer 2018, I am recovering well and almost finished with bracing.
I am excited to become a Curvy Girls Leader, so I can help many girls feel more comfortable about their struggles having scoliosis.
In my free time, I enjoy writing, reading, or doing something that keeps me busy. I participate on my school’s track team, which I love doing every day. I am the president of my school’s Builder’s Club, which is a club that does community outreach in the area and in my school.
I was 9 years old when I was put into a Boston brace to help maintain my curves from getting worse. Unfortunately, the brace didn’t hold my curves, so I was scheduled for fusion surgery. My Mom discovered VBT surgery and we traveled to three different states to consult with three different doctors. We decided to go with VBT after hearing all the doctor’s comments. The first surgery didn’t go as planned, since right after, I had some complications. I was required to have a second emergency surgery, and everything was fixed! I am now still recovering and being watched to make sure my curve doesn’t dramatically change.
I want to be a Curvy Girls leader because when I was going through the first steps of my Curvy Girls journey, I didn’t have anyone to talk to (I am the first person in my family that we know of that has scoliosis). When I joined the Detroit Curvy Girls group, I felt like I was really able to connect and relate to other girls who were going through the same thing as me. I want to be there for other girls so I can give advice and help them through anything they need help with. I want to be someone that girls can rely on and ask questions whenever they need to.