Meet Ava

Eastern Massachusetts 

My name is Ava and I am 13 going into eighth grade! I play the clarinet in the school band and I also do musical theater! In my spare time, I like to hang out with my friends and my cat, and occasionally write or draw.

 

I was diagnosed with scoliosis in mid-2018 when I was eleven. Ever since then, I have had three braces, and am still in my third one currently.

 

I love spreading awareness about scoliosis and I really want to be able to help others through their journey.

Hannah 2016-20
Olivia 2012-16
 

Meet Kirsten

Western Massachusetts

Hi I am Kirsten! I enjoy singing, reading, and latch hooking. I see scoliosis as a blessing in disguise, because it led me to Curvy Girls, and I am glad to be able to help others with scoliosis.

           

I was diagnoised with scoliosis at the age of 9 in June, and was told to come back every 6 months because my case did not require treatment. 18 months later, in January 2016, my doctor told me that I would be referred to Shriners. My case had worsened. By February, I had a night brace. That night I remember dreaming I had put it on, and then waking up with it off. Curvy Girls helped me in every way. I am inspired every day by all the girls who help each other.

           

I am here today as a CG Leader because I want to meet other girls who are going through the same thing.             

 
Meet Grace
Cape Cod Massachusetts

My name is Grace and I’m a Curvy Girls Leader on Cape Cod in Massachusetts! I was diagnosed with mild idiopathic scoliosis when I was eleven years old. My scoliosis was monitored for four years before it was incorrectly re-diagnosed as moderate in February of 2019. I went to get an x-ray and my scoliosis was correctly diagnosed as severe. I had to go to Boston Children’s Hospital in March of 2019 to see what the right course of action for me. I got to work with one of the best scoliosis specialists in the country, Dr. Michael Glotzbecker. My doctor said that because I had so little time left to grow, a back brace wouldn’t be the best option for me and that I needed a spinal fusion. I had a really hard time hearing that; I just shut down and really tried to ignore my scoliosis. I had six vertebrae fused in my thoracic and lumbar spine on July 9th, 2019. It was one of the most difficult things that I ever had to go through but it actually really helped me learn to love my journey and my scoliosis. I’m back to my everyday life and my hobbies, competitive robotics and photography! 

 

I really wanted to start a Curvy Girls group in my area because I had my aunt who also had a spinal fusion to talk to throughout my scoliosis journey and I know that some girls don’t have that resource. I wanted a place for girls in my community to be able to talk about their journeys, make friends and gain confidence.

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