My favorite hobbies are dancing, playing piano, singing, and sewing. I’m also a Patient Ambassador for Shriners Hospitals for Children Chicago.
When I was 11 years old I was diagnosed with scoliosis. at the time my curve was only 38 degrees. following my diagnosis, I started physical therapy, specifically the Schroth Method. I was never braced because I was almost done growing by the time I was diagnosed.
I had to stop physical therapy a few months after I had started, due to a leg injury. Once I was able to go back to physical activities I didn’t go back to physical therapy because my curve was stable. a year and a half later, my curve progressed to 47 degrees. That’s when it was determined that I needed to have Spinal Fusion surgery.
I had my surgery on July 2, 2019, and my final curve was 56 degrees. I have 2 titanium rods and 13 screws fusing my spine. now being one year post-op, I’m glad I had the surgery.
I want to help and encourage girls going through scoliosis. I want to help them find confidence in themselves and also to realize that being different isn’t a bad thing, it’s what makes them special.
Meet Alida & Anya
Leader Danielle 2014-19
My name is Alida and I am 13 years old. I enjoy doing volleyball, gymnastics, and hanging out with my friends. When I was 6 years old, the doctors found I had Chiari Malformation and I had to have brain surgery. The Chiari is what caused my scoliosis. When I was diagnosed, I had a 45 degree “C” curve to the left. My first brace was a Boston brace. After the first year, my parents decided to get me a WCR brace, and I learned I had to wear it 20-22 hours a day. Still today, I wear that same style of brace and my curve has been reduced to approximately 25 degrees. In August 2019, I will be getting my sixth brace.
I have attended Curvy Girls groups for five years, both in Northern Illinois and Central Illinois. Curvy Girls has encouraged me by knowing many other girls who understand what I’m going through. I love being a leader to help other girls through their scoliosis journey even if it is different from mine. I have wanted to be a leader for quite a while now because I would love to encourage as many girls as possible. Feel free to email me!
My name is Anya and I am currently in 9th grade. I was diagnosed in 2017 when I was 12 years old. I saw many doctors before I was put into a Boston Brace, which I wore for 18+ hours every day. This was very hard for me to adjust to and I was very quiet about it. Then at the end of 2017, at my 6 month appointment, I got the devastating news that my biggest curve had gone from 35 to 46 in a short amount of time, and I would likely need surgery. The next few months was probably one of the hardest times for me. I was drowning in worry and anxiety, and the fact that I felt as though I had to hide it from everyone certainly didn’t help. I was a 13 year old girl seeing tons of doctors, deciding between surgery dates and procedures and making decisions that no one should be thinking about in middle school. I had a spinal fusion surgery from about T1 to T12 on May 30, 2018. Recovery was tough but I eventually got through it. Now I am doing much better and I have learned to embrace my scoliosis and I love to tell people about it.
Besides spending time on the CG Forum, I like to read books and listen to podcasts. Some of my favorites are The Moth and Reply all. My favorite subject is math. A fun fact about me is that I lived in Colorado until I was about 5 years old and moved to Illinois.
I want to lead a group because I want to help other girls like I have been helped. I joined the curvy girls forum in 2017 and have been active ever since. CG saved my life during these years and I honestly don’t know what I would have done without it. I have found a place to share my true self, be supported in my hardest days, and help others through the storm that is scoliosis. I don’t want anyone to feel alone with this, and I would love to help other girls through the same thing, and hopefully make their lives a little bit easier. I also know that it’s not just a one way thing, that we can all help each other, and it can benefit me too. Curvy Girls is an amazing family of girls that only want to help, and I would be honored to help even more by being a leader.